Job Description
Bruck Syndrome Charity (Registered UK Charity No. ) is the only organisation in the UK dedicated entirely to supporting the Bruck Syndrome community. We exist to provide a lifeline to individuals and families navigating the profound challenges of this ultra-rare genetic condition.
Why We Exist
Bruck Syndrome is uniquely characterised by a combination of severe bone fragility (osteogenesis imperfecta) and congenital joint contractures. Because the condition is so exceptionally rare, families often face a lonely journey marked by a lack of clinical awareness, complex medical needs, and a constant battle for specialised support. We were founded to change this.
Whom We Serve
Our community includes anyone across the UK whose life is impacted by Bruck Syndrome. This includes
- Diagnosed Individuals: From infants requiring early intervention to adults managing lifelong mobility needs.
- Parents and Carers: Who manage round‑time ph...